Fraunhofer Institute for Manufacturing Engineering and Automation IPAIn the future we want to set up an interest group to be a contact point for people with traumatic plexus paralysis.
(For birth-related plexus paralysis we recommend the website: Plexuskinder e.V)
But why an interest group?
- Exchange with other affected people: To share experiences, to feel understood and to learn tips and tricks
- Helpful contacts to expert networks, because we know how difficult it is to find real proper help
- Representing opinions in medical care projects: to represent those who are affected and to enable them to contribute
What does it all look like?
- Anything is possible, help us and shape YOUR group!
- Basic concept:
o "get-together" evenings and exchange rounds to get to know each other and share experiences - online and available to everyone
o Topic evenings with experts, e.g. on insurance issues, plexus palsy and sport, etc. - Discuss current topics online
o Internal forum with the opportunity to ask questions and get to know other affected people and their stories
If you are interested, just get in touch, join in and - if you feel like it - help out!
Contact for our mailing list:
Veronika Hofmann: veronika.hofmann@ipa.fraunhofer.de