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In the future we want to set up an interest group to be a contact point for people with traumatic plexus paralysis. 

(For birth-related plexus paralysis we recommend the website: Plexuskinder e.V)

 

But why an interest group? 

  • Exchange with other affected people: To share experiences, to feel understood and to learn tips and tricks
  • Helpful contacts to expert networks, because we know how difficult it is to find real proper help
  • Representing opinions in medical care projects: to represent those who are affected and to enable them to contribute

 

What does it all look like?

  • Anything is possible, help us and shape YOUR group!
  • Basic concept
    • "get-together" evenings and exchange rounds to get to know each other and share experiences - online and available to everyone
    • Topic evenings with experts, e.g. on insurance issues, plexus palsy and sport, etc. - Discuss current topics online
    • Internal forum with the opportunity to ask questions and get to know other affected people and their stories

If you are interested, just get in touch, join in and - if you feel like it - help out! 

Contact for our (provisional) mailing list:

Veronika Hofmann: veronika.hofmann@ipa.fraunhofer.de